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@ARTICLE{Zoch:1007425,
      author       = {Zoch, Michele and Gierschner, Christian and Andreeff,
                      Anne-Katrin and Henke, Elisa and Sedlmayr, Martin and
                      Müller, Gabriele and Tippmann, Jenny and Hebestreit, Helge
                      and Choukair, Daniela and Hoffmann, Georg F. and
                      Fritz-Kebede, Fleur and Toepfner, Nicole and Berner,
                      Reinhard and Biergans, Stephanie and Verbücheln, Raphael
                      and Schaaf, Jannik and Fleck, Julia and Wirth, Felix
                      Nikolaus and Schepers, Josef and Prasser, Fabian},
      title        = {{S}econdary use of patient data within decentralized
                      studies using the example of rare diseases in {G}ermany: {A}
                      data scientist's exploration of process and lessons learned},
      journal      = {Digit Health},
      volume       = {10},
      issn         = {2055-2076},
      address      = {Thousand Oaks, Calif. [u.a.]},
      publisher    = {Sage},
      reportid     = {RWTH-CONV-253781},
      pages        = {[1]-11},
      year         = {2024},
      cin          = {951210},
      cid          = {$I:(DE-82)951210_20211015$},
      typ          = {PUB:(DE-HGF)16},
      UT           = {WOS:001288206900001},
      pubmed       = {pmid:39130526},
      doi          = {10.1177/20552076241265219},
      url          = {https://publications.rwth-aachen.de/record/1007425},
}