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@PHDTHESIS{Wienstroer:774771,
      author       = {Wienstroer, Philipp},
      othercontributors = {Lebherz, Corinna and Hövels-Gürich, Hedwig},
      title        = {{B}efinden und {L}ebensqualität bei {P}atienten mit
                      angeborenem {H}erzfehler im {E}rwachsenenalter},
      school       = {Rheinisch-Westfälische Technische Hochschule Aachen},
      type         = {Dissertation},
      address      = {Aachen},
      reportid     = {RWTH-2019-11748},
      pages        = {XII, 150 Seiten : Diagramme},
      year         = {2019},
      note         = {Dissertation, Rheinisch-Westfälische Technische Hochschule
                      Aachen, 2019},
      abstract     = {Thanks to medical progress, the therapy of adults with
                      congenital heart disease (ACHD) has significantly improved
                      resulting in both higher life expectancy and a growing
                      patient population. Besides physical outcome parameters, the
                      assessment of health-related quality of life (HRQOL) as a
                      measure to evaluate therapeutic success attracts increasing
                      attention. Methods: Patients, who were scheduled for their
                      regular checkups in the cardiological outpatient clinics of
                      the supraregional ACHD center of the university hospital in
                      Aachen, filled in questionnaires providing answers to the
                      following fields of interest: demographic data, locus of
                      disease and health control (KKG) and health-related quality
                      of life (SF36). The created files were completed by data
                      originating from physical examination or research on medical
                      records. Results: 206 patients (average age: 28 ± 10 years,
                      $46.1\%$ female) participated in the study. Both the
                      psychological and physical axis of SF36 indicated a
                      significantly lower quality of life in patients with
                      congenital heart disease compared to the normal values of
                      the German population. However, results suggest a rather
                      lowgraded reduced HRQOL in the overall cohort at
                      consistently low effect sizes. Positive predictors were high
                      professional qualification, positive employment status,
                      lower NYHA classes, an unrestricted cardiac ejection
                      fraction of the left ventricle and frequent physical
                      activity. The personal belief, that disease runs are
                      primarily determined by destiny revealed a negative impact
                      on the HRQOL, while the complexity of the underlying heart
                      disease did not. Conclusion: Adults with congenital heart
                      defect reveal a slightly reduced health-related quality of
                      life, whereas the complexity of the heart defect itself is
                      not necessarily the critical factor. Knowledge of
                      socioeconomic and physical/functional risk factors as well
                      as awareness of the individual locus of control with respect
                      to health and medical conditions are essential for an easier
                      identification of patients at risk and the determination of
                      appropriate offers for medical help.},
      cin          = {9310100},
      ddc          = {610},
      cid          = {$I:(DE-82)9310100_20140620$},
      typ          = {PUB:(DE-HGF)11},
      url          = {https://publications.rwth-aachen.de/record/774771},
}