Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

Hebestreit, Helge (Corresponding author) ; Zeidler, Cornelia ; Schippers, Christopher ; de Zwaan, Martina ; Deckert, Jürgen ; Heuschmann, Peter ; Krauth, Christian ; Bullinger, Monika ; Berger, Alexandra ; Berneburg, Mark ; Brandstetter, Lilly ; Deibele, Anna ; Dieris-Hirche, Jan ; Graessner, Holm ; Gündel, Harald ; Herpertz, Stephan ; Heuft, Gereon ; Lapstich, Anne-Marie ; Lücke, Thomas ; Maisch, Tim ; Mundlos, Christine ; Petermann-Meyer, Andrea ; Müller, Susanne ; Ott, Stephan ; Pfister, Lisa ; Quitmann, Julia ; Romanos, Marcel ; Rutsch, Frank ; Schaubert, Kristina ; Schubert, Katharina ; Schulz, Jörg B. ; Schweiger, Susann ; Tüscher, Oliver ; Ungethüm, Kathrin ; Wagner, Thomas O. F. ; Haas, Kirsten ; Akkaya, Federica (Contributor) ; Babka, Christine (Contributor) ; Bârlescu, Lavinia (Contributor) ; Bärsch-Michelmann, Anja (Contributor) ; Bergbreiter, Astrid (Contributor) ; Blömeke, Janika (Contributor) ; Böhm, Leonie (Contributor) ; Böttger, Benita (Contributor) ; Braun, Birgit (Contributor) ; Brinkmann, Folke (Contributor) ; Britz, Vanessa (Contributor) ; Cario, Holger (Contributor) ; Celiker, Melisa (Contributor) ; de Greck, Moritz (Contributor) ; Debatin, Klaus-Michael (Contributor) ; Dillmann-Jehn, Katrin (Contributor) ; Ertl, Max (Contributor) ; Ettinger, Monika (Contributor) ; Eymann, Jutta (Contributor) ; Frommer, Jörg (Contributor) ; Gabrian, Martina (Contributor) ; Glode, Anja (Contributor) ; Gödecke, Vega (Contributor) ; Grasemann, Corinna (Contributor) ; Grauer, Eva (Contributor) ; Greger, Helmut (Contributor) ; Haas, Astrid (Contributor) ; Haase, Martina (Contributor) ; Haisch, Lea (Contributor) ; Heinrich, Isabel (Contributor) ; Held, Melissa (Contributor) ; Hennermann, Julia (Contributor) ; Herrmann-Werner, Anne (Contributor) ; Hett, Julian (Contributor) ; Hilbig, Bettina (Contributor) ; Holthöfer, Laura (Contributor) ; Imhof, Christiane (Contributor) ; Jacob, Titus (Contributor) ; Junne, Florian (Contributor) ; Karl, Stefanie (Contributor) ; Kassubek, Jan (Contributor) ; Kick, Lisa (Contributor) ; Koschitzki, Kevin-Thomas (Contributor) ; Krassort, Heike (Contributor) ; Kratz, Christian (Contributor) ; Kristensen, Kaja (Contributor) ; Kropff, Birgit (Contributor) ; Kuhn, Julia (Contributor) ; Latzko, Philipp (Contributor) ; Loew, Thomas (Contributor) ; Lorenz, Delia (Contributor) ; Ludolph, Albert C. (Contributor) ; Dos Santos, Isabell Meyer (Contributor) ; Meyer, Torsten (Contributor) ; Mohnike, Klaus (Contributor) ; Monninger, Martina (Contributor) ; Musacchio, Thomas (Contributor) ; Nanciu, Amalia Nicole (Contributor) ; Nießen, Margret (Contributor) ; Nöhre, Mariell (Contributor) ; Papagianni, Aikaterini (Contributor) ; Pfeifer-Duck, Christina (Contributor) ; Piduhn, Lea-Sophie (Contributor) ; Rampp, Carina (Contributor) ; Richter, Antonia (Contributor) ; Rieß, Olaf (Contributor) ; Schmidt, Annika (Contributor) ; Schneider, Simone (Contributor) ; Schoels, Ludger (Contributor) ; Schwalba, Martina (Contributor) ; Selig, Udo (Contributor) ; Spangenberger, Astrid (Contributor) ; Sroka, Alexandra (Contributor) ; Steinbüchel, Toni (Contributor) ; Stösser, Sebastian (Contributor) ; Suchant, Steffi (Contributor) ; Vogel, Matthias (Contributor) ; Volk, Daniela (Contributor) ; Vollmuth, Christoph (Contributor) ; Volnov, Solange (Contributor) ; Walter, Sabrina (Contributor) ; Warrings, Bodo (Contributor) ; Weiler, Christine (Contributor) ; Witt, Stefanie (Contributor) ; Zajt, Kamil Kajetan (Contributor) ; Zeltner, Lena (Contributor) ; Zenker, Karola (Contributor) ; Zhang, Kailun David (Contributor) ; Zipfel, Stephan (Contributor)

In
Orphanet journal of rare diseases : OJRD 17(1), Seiten/Artikel-Nr.:47

2022

ImpressumLondon : BioMed Central

Umfang[1]-12

ISSN1750-1172

Online
DOI: 10.18154/RWTH-CONV-248933
DOI: 10.1186/s13023-022-02176-1
10.1186/s13023-022-02176-1
URL: https://publications.rwth-aachen.de/record/851845/files/851845.pdf

Einrichtungen

1. Klinik und Lehrstuhl für Innere Medizin (mit dem Schwerpunkt Onkologie und Hämatologie) (531040-2)

OpenAccess:
PDF

Dokumenttyp
Journal Article

Format
online

Sprache
English

Anmerkung
Peer reviewed article

Externe Identnummern
SCOPUS: SCOPUS:2-s2.0-85124680125
WOS Core Collection: WOS:000756241100004
PubMed: pmid:35164804

Interne Identnummern
RWTH-CONV-248933
Datensatz-ID: 851845

Beteiligte Länder
Germany